HOW TO HELP
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The generosity of so many people - friends, runners and their families, family, even strangers, has been wonderful. You've contributed individually, held fundraisers, and generally spread the word about DMD. We thank you all for your support.
Aidan's trust fund* now has a substantive foundation that is being invested to produce interest. To date, the trust has helped pay for the many medicines and supplements Aidan has to take daily, his visits to Dr. Wong in Cincinnati, and some of his monitoring equipment.
Our most fervent hope is that the future will see a cure for DMD so the trust money can be used for other purposes.* If you would like to help effect a cure for DMD, Aidan's best long-term chance, we are suggesting that contributions be made to Charley's Fund.
Charley's Fund is working diligently to fund cutting-edge projects seeking DMD cures and treatments. Scientists are very hopeful that a cure can be found soon. Read more about the projects they fund.
If you still wish to donate specifically to Aidan's trust, you can do so by sending a check (Please, no cash.) to:
The Aidan William Leffler Trust - Deposit to Acct #1059-8450
c/o David Moskovitz, Sr VP-Private Client Group
RBC Dain Rauscher - E8.
1201 3rd Ave., Suite 2500
Seattle, WA 98101-9824
*Aidan's trust was set up to take care of financial expenses that would not be required for a child without special needs. Our research has shown that Duchenne kids need things like: medicines, supplements, therapy, care giving, specialist care, special equipment for mobility, breathing, education, or play, special schooling, specialized travel, etc. John and Judy Schneider, Aidan's maternal grandparents, are the trustees who will oversee the distribution of funds to meet the purpose of the trust. If the trust is not needed for Aidan, the money will be donated to the Northwest chapter of the Muscular Dystrophy Association. Note: the trust is a not a charitable organization as it is for the benefit of one person only.
If you'd like your donation amount and/or your names to be anonymous, please specify that when you send in the check. Thank you in advance if you contribute anonymously.
Thank you once again for all your support.
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